Emmett goes to the pediatric ophthalmologist every 6-9 months to have his Brown's Syndrome (or here) evaluated to make sure his vision hasn't worsened. Today he told me, "I think I'm big enough!" "Big enough for what?" "Big enough to be here!" he replied. I thought it was pretty cute. He loves the "games" they do and today for the first time he sat in the big chair by himself the whole time.
After having his eyes dilated.
4 comments:
Did your son have surgery for the Brown's Syndrome? My daughter, 13 months, was just diagnosed with Brown's Syndrome and I am trying to get some different feed back on how things were handled and what other doctors have said.
Hi Alesha - I don't know how to write you back so I'm just commenting here and hoping that you'll see it. We just go in every 6-9 months so that the opthalmologist can check to make sure his eyes are still working together and that one isn't getting stronger than the other. He said, if his eyes stay healthy and strong nothing will need to be done. I have no idea when they're going to stop monitoring him, but it seems like it's not a huge deal. At least for my son's particular situation.
Did your doctor ever even suggest that surgery was the way to go? I have heard so many conflicting things that I have no idea what to do anymore. She has now been seen by two different ophthalmologists and one insists that she needs the surgery (the sooner the better) and one acted like it wasn't totally necessary.
It's never even been brought up for my son. He passes all the eye tests so it's not yet affecting his vision. Maybe that's different for your daughter. I have no advice for you! Our doctor seems to think, in our situation, it will probably have no long term impact other than not being an electrician (who would have to look up all the time). We have seen two doctors both with the same opinion, but I'm sure they make these judgments on a case by case basis. Your daughter's situation could be different. I hope you find an answer that you feel good about! Sounds like it must be stressful for you!
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